Shante Month Infant Explained for Students (Easy Guide)

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Shante is an 8-month-old infant who was just diagnosed with spinal muscular atrophy (SMA) Type 2 after her parents and pediatrician noticed that she was not meeting her developmental milestones. SMA is a degenerative and incurable genetic disorder that manifests in general muscle loss and mobility impairment over time. Shante’s parents were told that she may never be able to sit without assistance, stand, or walk. The physicians also told her parents that over time, some babies with this disease become unable to breathe and require ventilation support. Please refer both the Allen and Spitzer chaper as well as the assigned video, “Psychosocial Factors Affecting Children and Families Living with Chronic Illness.” to answer the following questions: Discuss possible psychosocial implications of this scenario, for the patients and family members. What questions from Table 12.1 (in Allen and Spitzer) do you regard as particularly crucial in a comprehensive psychosocial assessment? What do you believe are important components of ongoing care in each scenario?” https://www.youtube.com/watch?v=MrjgePgdMow https://www.youtube.com/watch?v=-PWrOMT1xAU Introduction Ecological perspective – Recognizes the interactions between patients, families and their environments. Patient Protection and Affordable Care Act – Is prompting new models of care designed to enhance the quality and economy of services Child Health In The United States Allen, Social Work Practice in Healthcare © 2015 SAGE Publications Inc. Statistics Almost six million children (8%) had no health insurance coverage 5% of children had no usual place of healthcare 2% of children were regarded as in fair or poor health Poverty 42% of children in poor families reported being in excellent health, compared with 64% of children in families that were not poor Special healthcare needs 21.8% of U.S. households with children have at least one child with special healthcare needs Increased risk for chronic physical, developmental, behavioral, or emotional condition; require services beyond that required by children generally Chronic Health Asthma – Chronic respiratory disease that impairs breathing. Diabetes – Type 1 & Type 2. Type 2 was previously known as “adult-onset” diabetes but children are increasingly been diagnosed with it. Obesity – Childhood obesity rates have tripled in the last thirty years. Obese children are likely to become obese adults. Cystic Fibrosis – Genetic disease involving mucus that builds up and obstructs vital organs in the body resulting in breathing problems. Life expectancy rates have increased but is a fatal disease. Cancer – Occurs when abnormal cells divide without control and invade other tissues. Incidence has increased slightly but mortality rates have declined Mental Health Serious changes in the way children typically learn, behave, or handle their emotions. Heightened awareness due to incidents of gun violence perpetrated by children and a desire to identify, understand, and provide treatment for at-risk children and prevent such tragedies. In 2010, suicide was the second leading cause of death among adolescents aged 12 to 17 years. Mental Health Surveillance Among Children – United States 2005-2011 Developmental Disabilities Can occur at birth through genetic mutations or acquired through childhood trauma. Attention Deficit Disorder, intellectual disability, cerebral palsy. Autism, seizures, stuttering or stammering, profound hearing loss, blindness, learning disorders, and/or other developmental delays. Between 2006 and 2008, reported in one in six children in the U.S Disability is regarded as a natural and normal part of human experience and does not diminish the rights of individuals to make choices and direct their care and participate to the greatest extent possible in their communities Developmental Disabilities Assistance and Bill of Rights Act 2000 Severe, chronic disability in a child that impedes the achievement of normally expected developmental milestones and capacities. Manifested before the age of 22 Mental and/or physical impairments expected to persist indefinitely Result in substantial functional limitations in three or more of the following ADLs: Self-care, receptive and expressive language, learning, mobility, self-direction, and the capacity for independent living and economic self-sufficiency. States must establish a protection and advocacy center to ensure the rights of these individuals are protected. Developmental Disabilities Person-centered planning – Places the individual and family at the center of all care planning. Individualized Education Plans (IEP) – is a plan or program developed to ensure that a child who has a disability identified under the law and is attending an elementary or secondary educational institution receives specialized instruction and related services. Social Work Practice Knowledge and Skills: The Impact of Illness on Children and Families Family Systems Theory – frequently employed as the “lens” through which to view the patient and family. Family Adjustment and Adaptation Response (FAAR) Model – Framework for understanding the impacts of a child’s condition on his or her family. Families strive to restore balance through adaptation: 1. Altering or expanding definitions and meanings, taking into account their changed circumstances 2. Reducing pileup of demands 3. Developing and acquiring new resources, and 4. Developing new coping strategies for dealing with demands

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